Our beautiful son Owen was born on August 26, 2011. He shares his birthday with his dad and his heart of both of us.

Unfortunately, on November 13th 2011 he suffered from a pediatric stroke that caused brain damage to his right
frontal lobe. After the stroke we were told that Owen may not be able to walk and would likely lose the majority of movement in his left arm and hand. Owen was working hard to prove them wrong. Attending physical and occupational therapy, Owen began using his hand to show the doctors that he is too stubborn to listen to them.

On January 27th, 2011… Owen went in for a EEG to see how he was progressing since being taken off one of the many dications he is on. During that time we found that Owen was having infantile spasms. Infantile spasms are an extremely dangerous kind of epilepsy that is often linked with developmental issues. Owen now has the tough job of going through a diet and steroid regiment in addition to all of the other work he was already doing. We are confident that Owen will once again beat the odds and show us how tough he his!

Saturday, August 25, 2012

Another EEG

Hello everyone-

Wow, it's been a busy last couple of days.  I wanted to write and give you an update, I know most people have been sitting on the edge of their seat waiting for this update.

So without further adieu, our Owen update:

Owen's surgery was scheduled for Wednesday August 22nd. When we walked down from the 6th floor to the pre-op room, everyone on 6 all wished us luck and did the cross your fighters sign, as we walked the hallway. You know that you have been there to way too long, when everyone does that. We were blessed to have the same nurse watch Owen during surgery, Erica, she even remember the names of the 3 animals go along during surgery.  We had 3 neurosurgeons talk with us, they all know us and we had a nice chat before we gave Owen Great big hugs and kisses.  

So, I know your next question, have we seen any seizures or spams? Well yes we have seen some spams, but it has been very minimal compared to the hundreds that we used to see. We are very hopeful that they are just residual and that it's just the brain healing.  Owen has been resting very comfortably and sleeping a lot.  Mike and I are okay with this as we want to make sure he gets better.  He is on a feeding tube only because we want to make sure he is eating. Mike and I have commented as we took our nightly walk that this surgery seems different, Owen looks great.  We are very hopeful for the future.

Friday was a very hard day for Owen, he had a seizure that was BAD! It was 45 minutes and emergency drugs were having struggles stoping it. Thanks grandma for supporting our Owen through this. Afterwards they hooked him back to an EEG. The EEG showed no other seizure activity. Yeah! But it showed abnormalities on the left side. They don't know what's going on... :(

It going to be a quiet weekend for Owen we are planning on making Owen comfortable and just relaxing.  We are excited to report, Owen has now gotten a tooth :) Owen turns one year on Sunday. Wow, what a year!

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