Our beautiful son Owen was born on August 26, 2011. He shares his birthday with his dad and his heart of both of us.

Unfortunately, on November 13th 2011 he suffered from a pediatric stroke that caused brain damage to his right
frontal lobe. After the stroke we were told that Owen may not be able to walk and would likely lose the majority of movement in his left arm and hand. Owen was working hard to prove them wrong. Attending physical and occupational therapy, Owen began using his hand to show the doctors that he is too stubborn to listen to them.

On January 27th, 2011… Owen went in for a EEG to see how he was progressing since being taken off one of the many dications he is on. During that time we found that Owen was having infantile spasms. Infantile spasms are an extremely dangerous kind of epilepsy that is often linked with developmental issues. Owen now has the tough job of going through a diet and steroid regiment in addition to all of the other work he was already doing. We are confident that Owen will once again beat the odds and show us how tough he his!

Thursday, August 16, 2012

3rd Surgery

Hello everyone-

Here we are again, another day in Children's Hospital.  Don't get me wrong, I love that we have this place but I hate that I live here.

I don't know where I should begin.  I guess that's the harder part of writing email updates to everyone.  You just don't want to sound so depressing but you almost feel like that's all you really have to say sometimes.  So my apologies first,  I am sorry if this sounds really depressing.

  • We continue to see seizures and spams.
  • Owen has a fever for unknown reasons.
  • We again are faced with our last surgical option, next week, Owen will have an anatomical hemispherectomy on August 22.

An anatomical surgery is different from his last two functional surgeries. They will be literally removing half his brain from his skull. So I know your next question is going to be...How does that affect Owen?  Fortunately, the brain is amazing and can actually overcome this. Many people who have the surgery turn out just fine. There is a recent story about a man who went to see his doctor for headaches.  The doctor completed an MRI and found that fluid had replaced almost his entire brain, he is walking, talking and has a family.

So Owen can overcome a lot. I am still  hopeful that Owen is going to do amazing things in the future. He is just going to half his brain tied behind his back.  If we can get the seizures under control Owen can be a kid and I can erase this year from my memory; like a bad dream.

Mike and I have started to get to know the people on the floor and in the halls, it's bad when the hospital coffee shop knows who you are and what you drink! We have got to get out of here.

On a positive note, Owen will be turning one on the 26th. Unfortunately he will be celebrating it here. Here are a few other positives:

  • Owen is enjoying cuddling with Mike and I.
  • Enjoyed pudding for the first time!
  • Has been out of the room a couple times.
  • Today Owen had amazing day.  He was awake and a wonderfully little boy. We needed that.
  • He is getting much needed rest.

Well there's the good the bad and the ugly as most everyone likes to say.  I pray everyday that there is good news. But I am not giving up on Owen.  As always, thank your for your support, visits, meals and kind words. Each and everyone of your are blessing that have supported us so much.  I don't think we can ever say thank you enough.

Hugs from all of us here at Children's.
Val, Mike and Owen

1 comment:

  1. You all are in my thoughts and prayers. It sounds like he is doing well, despite all he is going through. So happy to hear you had a good day today, be in the moment right.
    Happy early Birthday Owen!
    Much Love,