Our beautiful son Owen was born on August 26, 2011. He shares his birthday with his dad and his heart of both of us.

Unfortunately, on November 13th 2011 he suffered from a pediatric stroke that caused brain damage to his right
frontal lobe. After the stroke we were told that Owen may not be able to walk and would likely lose the majority of movement in his left arm and hand. Owen was working hard to prove them wrong. Attending physical and occupational therapy, Owen began using his hand to show the doctors that he is too stubborn to listen to them.

On January 27th, 2011… Owen went in for a EEG to see how he was progressing since being taken off one of the many dications he is on. During that time we found that Owen was having infantile spasms. Infantile spasms are an extremely dangerous kind of epilepsy that is often linked with developmental issues. Owen now has the tough job of going through a diet and steroid regiment in addition to all of the other work he was already doing. We are confident that Owen will once again beat the odds and show us how tough he his!

Sunday, April 29, 2012

Purple de Mayo

I figured even if there isn't much new to report you are probably wondering how Owen is doing.

So I first like to say. Sorry it has taken so long to write. These last couple of months have been pretty busy with a lot going on.We are doing good. Owen continues to show his true spirt and love! :) He has started using his left hand, we were thrilled to see it move. Recently he has decided that he has to hold the sippy cup. And gets upset when you help. We continue seeing his develop which is a big
positive. On the other hand the infantile spasm continue to worry us and we recently started a new drug in hopes that they would help. Unfortantly,  we have seen spasms and now know what doctors are
talking about. We think it's the drug. We hope to be off of it soon, but we will see.

We have recently been cleared to go out and play without young kids. So we have been enjoying the sunshine and walking the Dora (our dog) around the neighborhood.

Please continue to pray that these most hated spasms are under control very soon. We hope to have a ton more answers when we get the results from his latest EEG. I am also trying to get people to support our cause so I have posted the following on Facebook and linked in. Are you going to help?

Pediatric stroke affects 25 in 100,000 newborns and 12 in 100,000 children under 18 years of age. Stroke is the sixth leading cause of death in children. I am a proud mom of a pediatric stroke survivor! I will be wearing my purple on May 5th to support Kids like Owen! Will you do this for the Murray family and kids and families Like us?

Thank you all for your support!

Hope this letter or note finds you well continue to pray for Owen to get over this hurtle.

Thanks,
Val
Posted by at

No comments:

Post a Comment

Subscribe to: Post Comments (Atom)