Wow, I feel like it’s been so long since we have written, we have noticed a lot of people are calling and wondering how we are doing. Well it’s been a crazy last couple of months. We have been keeping our heads down and working hard to get Owen through physical and occupational therapy schedules, along with working and figuring out where we need to be.
It’s been crazy. We are happy to report that the seizures although still there are much less than before. We went from hundreds a day to one a week. We have gotten rid of a drug that we started almost a year ago this month. Wow, I can’t believe that it’s only been a year; we have made so much progress in the last year and even in the last months. Owen has been showing his true character.
We ditched the NG feeding tube about 2 weeks after we got home. We then started focusing all our attention on eating food, that’s where we have been for a while now. It’s been pretty fun and hard all at the same time. But we were told to have fun with food, so we went outside and enjoyed a food fight. We then proceed to eating with a pacifier, which worked well. And just recently we have gotten Owen to eat without the pacifier.
Physically Owen has shown a ton of progress, been really interesting in being on his tummy, and is starting to show interest in crawling. Physical therapy is so excited about this to be honest so are mom and dad. It’s awesome to see. It’s great progress! It’s nice to see after everything. He continues to learn and talk a little, mostly baby word but there are times the words are clear. The other day PT asked Owen if he wanted to roll over and Owen said “no” it was really cute.
Well, I don’t know anything else, it been pretty quiet but busy. We really want to thank you for all your support over the last year. We are truly blessed to have to you have a part of our lives. You all have been so supportive and we can’t thank you enough.
Val, Mike, & Owen