tag:blogger.com,1999:blog-85669001586486247792023-12-17T19:55:56.471-07:00Owen's StoryOwen Murrayhttp://www.blogger.com/profile/02825128262930313091noreply@blogger.comBlogger14125tag:blogger.com,1999:blog-8566900158648624779.post-21687817464655790912015-04-12T21:35:00.003-06:002015-04-12T21:42:26.611-06:00<span style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px;">Hello everyone-</span><br />
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<span style="background-color: white; color: #222222; font-family: arial, sans-serif; font-size: 13px;">Well, if you are getting this and wondering how we are doing, we are actually doing quiet well. Owen has started saying a ton of words and preschool has been a Great thing for him. We couldn't be prouder of him. Its so fun to have a conversation with him!! Which is great news. Walking has been a challenge for him which we are hoping will change with upcoming events. Which brings me to the next thing. Owen will be going through another surgery on Wednesday. Not something that we want or wish to do of course, but neurosurgery believes that putting in a shunt to relieve the pressure build up will be good for him. :( Yes, it's a bummer but it's a pretty easy. We all should be back home on Thursday after one day in there hospital. Which is a good thing. </span><br />
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So information about what we are doing, we are placing a shunt in Owens brain to relieve pressure, so basically it's a drain that will run from Owen's brain down into his tummy. or as i like to call it a Brain drain. </div>
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You might be asking how mike and I are holding up. You know, pretty well, we have actually known for a while just didn't want to admit that we needed to do something about it, But we really believe that it's going to be the best for Owen.</div>
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Other than that Owen is doing well, has a love hate relationship with his little brother, who is starting to walk. Owen pulls him down a lot!! But we do catch them playing together has to be the coolest things we have seen. Owen is not only going to preschool, which he loves, he is speech, PT, OT, Music, and swimming therapy. I think he loves swimming and music the best. It has been a journey for him but he has so much determination! it's great to see as his mom.</div>
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Please keep Owen in your thoughts and prayers this week for a quick recovery. </div>
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The last thing that I really wanted to bring up is the 4th annual purple de mayo. Yes we are doing it again. I am a super busy mom, so I am not asking for much, just that you wear purple to show your support. If you would like to share pictures I would love to see them, as I think Owen would get a kick out of it too. Remember Purple de mayo is on the 5th of May. I hope that you all will make part. </div>
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Please feel free to email me if you have any questions.</div>
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Thank you so much for all the love and support!!<br />
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Owen Murrayhttp://www.blogger.com/profile/02825128262930313091noreply@blogger.com0tag:blogger.com,1999:blog-8566900158648624779.post-84571577845827060082013-07-02T22:35:00.001-06:002013-07-12T08:16:34.373-06:002nd Birthday!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5yngn7hk9-FxTi7FCaRGWPNcLFNgkwxWw8Ck-8d4Os3rKsa3iaQWaePrGVbIyOXxxDCg8estf2Ash7tYBeZ-5VK-cr4FSIYyixfFULlLtnNVb-ekoqbozU_fEbQmoQuH_fQDnbU4aOAqf/s1600/Owen+21+months.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5yngn7hk9-FxTi7FCaRGWPNcLFNgkwxWw8Ck-8d4Os3rKsa3iaQWaePrGVbIyOXxxDCg8estf2Ash7tYBeZ-5VK-cr4FSIYyixfFULlLtnNVb-ekoqbozU_fEbQmoQuH_fQDnbU4aOAqf/s320/Owen+21+months.JPG" width="239" /></a>All,<br />
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Thank you for the support you have given Owen, Val, and I over the last<br />
year. Please feel free to come celebrate Owens 2nd birthday and many<br />
accomplishments. We will not be accepting gifts, but will have a Children's<br />
hospital donation drop if you really wanted to do something. If you are<br />
worried you won't know anyone... Just bring a friend.<br />
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Please try and RSVP via the Facebook invite or email Val at<br />
<a href="mailto:valbrooks@gmail.com">valbrooks@gmail.com</a>.<br />
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Thanks!<br />
The Murray's<br />
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<br />Owen Murrayhttp://www.blogger.com/profile/02825128262930313091noreply@blogger.com0tag:blogger.com,1999:blog-8566900158648624779.post-89108534832013075152012-12-21T12:33:00.001-07:002012-12-21T12:33:29.095-07:00Merry Christmas and Happy Holidays!<div class="MsoNormal" style="line-height: 90%; margin: 0in 0in 10pt 22pt; text-indent: -22pt;">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiiP6H4WVJl8eze32XtJcyTuQ_VCkx4VSuOMfndljXzd92IqM4uW0ScoHs60aYH_pIUUB5uwZME8WUn2XQK-t6m83AKvTeX-lTVxSy0lFttvX_ohISG3qZcz-ZczCSQktH2TZQUD6u6VwTO/s1600/DSC00313.JPG" imageanchor="1" style="clear: left; cssfloat: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiiP6H4WVJl8eze32XtJcyTuQ_VCkx4VSuOMfndljXzd92IqM4uW0ScoHs60aYH_pIUUB5uwZME8WUn2XQK-t6m83AKvTeX-lTVxSy0lFttvX_ohISG3qZcz-ZczCSQktH2TZQUD6u6VwTO/s1600/DSC00313.JPG" eea="true" height="320" width="228" /></a><span style="font-family: Calibri;">I hope this letter is finding everyone in good health and good spirits.<span style="mso-spacerun: yes;"> </span>Mike, Owen and I thought that we would take an opportunity to share with you what has been going on in our lives over the past year.</span></div>
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<span style="font-family: Calibri;">2012 has been a hard year, but it seems to be getting better as we make our way into 2013. This year Owen experienced a stroke, diagnosis of infantile spasms, more than a dozen different drugs, injections, several months at Children’s hospital, and three major brain surgeries. I am at a loss of how to describe this last year to anyone so that maybe you would understand, so we just listed them. <span style="mso-spacerun: yes;"> </span>I am not going to tell you how everything happened.<span style="mso-spacerun: yes;"> </span>I am not going to tell you how hard this year was for us because this time of year is a time to celebrate, a time to rejoice, and a time to witness miracles.<span style="mso-spacerun: yes;"> </span>So this year I am going to celebrate the positive things in our lives.</span></div>
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<span style="font-family: Calibri;">I will celebrate that although I enjoyed my previous job, I have a new one that allows me to be much closer to home. Mike continues to work and no I haven’t figured out what he does, maybe that will be something I do in 2013. Dora continues to lie on the coach as a coach potato; I think that we desperately need to give her some potatoes chips, a beer, and sunglasses for next year’s picture.<span style="mso-spacerun: yes;"> </span>We are also very thankful for both of Owen’s grandmothers who take turns watching him every week.</span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3tXSFxLe4ADKB2_rUPJf23_lILvkUcLYjJ08wF_AnxcaxgoMevWMZ2kk3c2Fl6FFis9T6KX6LGNtnFvKkU2yrwZmUEEwSndR1Bsl2JOH7hPIBOZP6FannkRtaLIRzbZYMwPxVp3Ap3CL4/s1600/DSC00286.JPG" imageanchor="1" style="clear: right; cssfloat: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3tXSFxLe4ADKB2_rUPJf23_lILvkUcLYjJ08wF_AnxcaxgoMevWMZ2kk3c2Fl6FFis9T6KX6LGNtnFvKkU2yrwZmUEEwSndR1Bsl2JOH7hPIBOZP6FannkRtaLIRzbZYMwPxVp3Ap3CL4/s1600/DSC00286.JPG" eea="true" height="320" width="240" /></a><span style="font-family: Calibri;">Owen is a strong willed little boy with so much strength.<span style="mso-spacerun: yes;"> </span>He has more determination to do something than I thought anyone ever could.<span style="mso-spacerun: yes;"> </span>Owen has set out his own path on when he is going to accomplish things. We are excited with what he can do.<span style="mso-spacerun: yes;"> </span>He is not the typical one year old, although he looks it he is. He is very much an independent little boy.<span style="mso-spacerun: yes;"> </span>He is currently sitting up, starting to crawl, and learning to stand.<span style="mso-spacerun: yes;"> </span>Physical therapy has been working hard with Owen to help him be interested in crawling and walking.<span style="mso-spacerun: yes;"> </span>I didn’t think I would ever be so excited to see a little boy walk as I am now.<span style="mso-spacerun: yes;"> </span>Owen has had an uphill battle these last few months but I am constantly reminded that he is my little boy showing off the miracles that he has given.<span style="mso-spacerun: yes;"> </span></span></div>
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<span style="font-family: Calibri;">Owens’s first birthday was very low key.<span style="mso-spacerun: yes;"> </span>We really didn’t celebrate; we weren’t really in the mood to celebrate. Although we were out the Pediatric ICU, we were still at the hospital and it was still hard to really celebrate a millstone birthday. The doctors were amazing, brought us some cake and ice cream, and had an amazing dinner from Grandma and Grandpa Murray.<span style="mso-spacerun: yes;"> </span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjuVuQp4GC9c5P59I2tg3hrIWmq25-W7j4zKzQ7nyaDjGrJnYDIvyYr_q8SQO5l9CVSmqyxt4ahJErj7RdxeUf5zIN0BQNCRoI5Q52zhEp2lvPjVLC8-xKDJzPMhyn8x6lnaNv8MKKT2XSr/s1600/murray_color188.jpg" imageanchor="1" style="clear: left; cssfloat: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjuVuQp4GC9c5P59I2tg3hrIWmq25-W7j4zKzQ7nyaDjGrJnYDIvyYr_q8SQO5l9CVSmqyxt4ahJErj7RdxeUf5zIN0BQNCRoI5Q52zhEp2lvPjVLC8-xKDJzPMhyn8x6lnaNv8MKKT2XSr/s1600/murray_color188.jpg" eea="true" height="320" width="213" /></a><span style="font-family: Calibri;">On Sept 9<sup>th</sup> Mike, Owen </span></div>
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<span style="font-family: Calibri;">and I made our wonderful way out the Children’s hospital.<span style="mso-spacerun: yes;"> </span>We were so excited, 2 months of hospital food, and getting to go home, our home.<span style="mso-spacerun: yes;"> </span>Since being home, our lives have changed again.<span style="mso-spacerun: yes;"> </span>Owen as I said before has showed how strong he is.<span style="mso-spacerun: yes;"> </span>He is sitting up without assistance, working on lots of tummy time, and is working on walking with PT’s help.<span style="mso-spacerun: yes;"> </span>He has been talking up a storm almost like his world had been so quiet for so long, he needs to make up for all the lost talking now. We have gotten looks in stores; can you please keep your baby quiet? I look right back and smile, no! </span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgOR7ul7bjuAcKHvVnusLkhMTnicQlzlSe09UgeVgJV0MaATNGKy1RNx3vgG6kPMbWn9PzEP9pXQ_sLXlVjLsFcV5pnz-Kg7iltxmFfsDnjUJPbSvftVgFM625iwVJaAN8QjFHreHxY2j2W/s1600/murray_color129.jpg" imageanchor="1" style="clear: right; cssfloat: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgOR7ul7bjuAcKHvVnusLkhMTnicQlzlSe09UgeVgJV0MaATNGKy1RNx3vgG6kPMbWn9PzEP9pXQ_sLXlVjLsFcV5pnz-Kg7iltxmFfsDnjUJPbSvftVgFM625iwVJaAN8QjFHreHxY2j2W/s1600/murray_color129.jpg" eea="true" height="320" width="213" /></a><span style="font-family: Calibri;">We have much to celebrate this year, much to be thankful.<span style="mso-spacerun: yes;"> </span>Although this year has been hard, I am constantly reminded of how amazing Owen is.<span style="mso-spacerun: yes;"> </span>We have been surrounded with family and friends.<span style="mso-spacerun: yes;"> </span>And if you have been a part of it, we can’t thank you enough.<span style="mso-spacerun: yes;"> </span>If you haven’t I know that you have been thinking of us.<span style="mso-spacerun: yes;"> </span>So thank you!!<span style="mso-spacerun: yes;"> </span></span></div>
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<span style="font-family: Calibri;"><span style="mso-spacerun: yes;"></span></span><span style="font-family: Calibri;">I am leaving this letter with a challenge, find and appreciate a miracle. For those of you, who feel sorry for us, please don’t; we get to witness miracles every day! <span style="mso-spacerun: yes;"> </span>We are witnesses to miracles with every smile, movement, everything Owen does! We would love for you to find a miracle to witness, I pray that you will see them as we do. Merry Christmas! I hope that next year is a bright year!</span></div>
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<span style="font-family: Calibri;">Val, Mike, Owen and Dora</span></div>
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Owen Murrayhttp://www.blogger.com/profile/02825128262930313091noreply@blogger.com0tag:blogger.com,1999:blog-8566900158648624779.post-739395620658727542012-11-05T23:04:00.001-07:002012-11-05T23:04:20.393-07:00Happy Halloween<html><body> <div style="clear: both;">
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</body></html>Well Hello everyone-<br /><br />Wow, I feel like it’s been so long since we have
written, we have noticed a lot of people are calling and wondering how we are
doing. Well it’s been a crazy last couple of months. We have been keeping our
heads down and working hard to get Owen through physical and occupational
therapy schedules, along with working and figuring out where we need to
be.<br /><br />It’s been crazy. We are happy to report that the seizures although
still there are much less than before. We went from hundreds a day to one a
week. We have gotten rid of a drug that we started almost a year ago this month.
Wow, I can’t believe that it’s only been a year; we have made so much progress
in the last year and even in the last months. Owen has been showing his true
character. <br /><br />We ditched the NG feeding tube about 2 weeks after we got
home. We then started focusing all our attention on eating food, that’s where we
have been for a while now. It’s been pretty fun and hard all at the same time.
But we were told to have fun with food, so we went outside and enjoyed a food
fight. We then proceed to eating with a pacifier, which worked well. And just
recently we have gotten Owen to eat without the pacifier. <br /><br />Physically
Owen has shown a ton of progress, been really interesting in being on his tummy,
and is starting to show interest in crawling. Physical therapy is so excited
about this to be honest so are mom and dad. It’s awesome to see. It’s great
progress! It’s nice to see after everything. He continues to learn and talk a
little, mostly baby word but there are times the words are clear. The other day
PT asked Owen if he wanted to roll over and Owen said “no” it was really cute.
<br /><br />Well, I don’t know anything else, it been pretty quiet but busy. We
really want to thank you for all your support over the last year. We are truly
blessed to have to you have a part of our lives. You all have been so supportive
and we can’t thank you enough. <br /><br />Happy Halloween:<br />Val, Mike, &
OwenOwen Murrayhttp://www.blogger.com/profile/02825128262930313091noreply@blogger.com1tag:blogger.com,1999:blog-8566900158648624779.post-4105718274946370892012-08-25T09:52:00.001-06:002012-08-25T09:52:28.745-06:00Dr. Seuss<html><body> <div style="clear: both;"></div><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgdqF6twz1uMxKV8IYHFqljxW7jDuxEbVaZmOPlnN-66YW_2OpCMRNZvBLABTWGe0bY7zzk6nIB8utQOGsl8PtpUX9TQp_oJIjlMfOuwsaBFBM-9xcJyNvwTB3ZHZ2UOr508lhgAqk2tn32//" align="left" style="margin-right:25px;"><div style="clear: both;"></div> <div style="clear: both;"></div></body></html>Owen Murrayhttp://www.blogger.com/profile/02825128262930313091noreply@blogger.com0tag:blogger.com,1999:blog-8566900158648624779.post-67958264193648941582012-08-25T08:43:00.001-06:002012-08-25T08:45:53.983-06:00Another EEGHello everyone-<br />
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Wow, it's been a busy last couple of days. I wanted to write and give you an update, I know most people have been sitting on the edge of their seat waiting for this update. <br />
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So without further adieu, our Owen update:<br />
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Owen's surgery was scheduled for Wednesday August 22nd. When we walked down from the 6th floor to the pre-op room, everyone on 6 all wished us luck and did the cross your fighters sign, as we walked the hallway. You know that you have been there to way too long, when everyone does that. We were blessed to have the same nurse watch Owen during surgery, Erica, she even remember the names of the 3 animals go along during surgery. We had 3 neurosurgeons talk with us, they all know us and we had a nice chat before we gave Owen Great big hugs and kisses. <br />
<br />
So, I know your next question, have we seen any seizures or spams? Well yes we have seen some spams, but it has been very minimal compared to the hundreds that we used to see. We are very hopeful that they are just residual and that it's just the brain healing. Owen has been resting very comfortably and sleeping a lot. Mike and I are okay with this as we want to make sure he gets better. He is on a feeding tube only because we want to make sure he is eating. Mike and I have commented as we took our nightly walk that this surgery seems different, Owen looks great. We are very hopeful for the future.<br />
<br />
Friday was a very hard day for Owen, he had a seizure that was BAD! It was 45 minutes and emergency drugs were having struggles stoping it. Thanks grandma for supporting our Owen through this. Afterwards they hooked him back to an EEG. The EEG showed no other seizure activity. Yeah! But it showed abnormalities on the left side. They don't know what's going on... :(<br />
<br />
It going to be a quiet weekend for Owen we are planning on making Owen comfortable and just relaxing. We are excited to report, Owen has now gotten a tooth :) Owen turns one year on Sunday. Wow, what a year!<br />
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Owen Murrayhttp://www.blogger.com/profile/02825128262930313091noreply@blogger.com0tag:blogger.com,1999:blog-8566900158648624779.post-42890048526270033862012-08-16T21:04:00.001-06:002012-08-16T21:11:12.254-06:003rd Surgery<br />
Hello everyone-<br />
<br />
Here we are again, another day in Children's Hospital. Don't get me wrong, I love that we have this place but I hate that I live here. <br />
<br />
I don't know where I should begin. I guess that's the harder part of writing email updates to everyone. You just don't want to sound so depressing but you almost feel like that's all you really have to say sometimes. So my apologies first, I am sorry if this sounds really depressing. <br />
<br />
<ul>
<li><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875);">We continue to see seizures and spams.</span></li>
<li><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875);">Owen has a fever for unknown reasons.</span></li>
<li><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.292969);">We again are faced with our last surgical option, next week, Owen will have an anatomical hemispherectomy on August 22.</span></li>
</ul>
<br />
<span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875);">An anatomical surgery is different from his last two functional surgeries. They will be literally removing half his brain from his skull. So I know your next question is going to be...How does that affect Owen? Fortunately, the brain is amazing and can actually overcome this. Many people who have the surgery turn out just fine. There is a recent story about a man who went to see his doctor for headaches. The doctor completed an MRI and found that fluid had replaced almost his entire brain, he is walking, talking and has a family.</span><br />
<br />
So Owen can overcome a lot. I am still hopeful that Owen is going to do amazing things in the future. He is just going to half his brain tied behind his back. If we can get the seizures under control Owen can be a kid and I can erase this year from my memory; like a bad dream.<br />
<br />
Mike and I have started to get to know the people on the floor and in the halls, it's bad when the hospital coffee shop knows who you are and what you drink! We have got to get out of here.<br />
<br />
On a positive note, Owen will be turning one on the 26th. Unfortunately he will be celebrating it here. Here are a few other positives:<br />
<br />
<br />
<ul>
<li><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875);">Owen is enjoying cuddling with Mike and I.</span></li>
<li><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875);">Enjoyed pudding for the first time!</span></li>
<li><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875);">Has been out of the room a couple times.</span></li>
<li><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875);">Today Owen had amazing day. He was awake and a wonderfully little boy. We needed that.</span></li>
<li><span class="Apple-style-span" style="-webkit-composition-fill-color: rgba(175, 192, 227, 0.230469); -webkit-composition-frame-color: rgba(77, 128, 180, 0.230469); -webkit-tap-highlight-color: rgba(26, 26, 26, 0.296875);">He is getting much needed rest.</span></li>
</ul>
<br />
<br />
Well there's the good the bad and the ugly as most everyone likes to say. I pray everyday that there is good news. But I am not giving up on Owen. As always, thank your for your support, visits, meals and kind words. Each and everyone of your are blessing that have supported us so much. I don't think we can ever say thank you enough.<br />
<br />
Hugs from all of us here at Children's.<br />
Val, Mike and Owen<br />
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Owen Murrayhttp://www.blogger.com/profile/02825128262930313091noreply@blogger.com1tag:blogger.com,1999:blog-8566900158648624779.post-27031609758543355362012-08-12T11:09:00.001-06:002012-08-12T11:09:59.443-06:00Post Surgery<html><body>Ok... so sometimes we have good days and sometimes we have bad days. Today kinda sucks... but yesterday was a lot of fun!<br /><br />Post surgery Owen did not look as promising as he did before; he was having seizures almost immediatly afterwards. He is having both the tonic and clonic and the infantile spasms. At this point it appears our medical team is a little unsure of what to do... so we sit here and wait for a future path.<br /><br />Despite what the doctors may suggest, we believe Owen is going to suprise everyone. <br /><br />Today sucks because we have to give emergency medican again... yesterday was fun because he was acting like himself... all we can hope for is more good days than bad.<br /><br />Mike<br /><br /><div style="clear: both;"></div><div style="clear: both;"></div><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIY742UY-k61o6gfegr73RiY0bRyVWRl2BQdyKM-9PaLUUDixUxPwO8AZfs4C72-MFF5m5I1dpQC-OXYee9OJb5I1Fz66A562b_O3O3kspoQh2t1ggdlfrjKUFN-K7jCvpqpp21NYGRhOR//" style="display: block; margin: 0 auto;"><div style="clear: both;"></div> <div style="clear: both;"></div></body></html>Owen Murrayhttp://www.blogger.com/profile/02825128262930313091noreply@blogger.com0tag:blogger.com,1999:blog-8566900158648624779.post-50369410473528957352012-08-06T12:19:00.002-06:002012-08-06T12:19:10.729-06:002nd SurgeryHello Everyone<br />
<br />
This is a quick update on Owen. Owen did great at surgery on July 13th, we are going back in for another surgery on August 7th as we are still seeing seizures. Please keep Owen in your prayers as we do another surgery.<br />
<br />
I will keep you posted. Thanks so much for the support!<br />
<br />
ValOwen Murrayhttp://www.blogger.com/profile/02825128262930313091noreply@blogger.com0tag:blogger.com,1999:blog-8566900158648624779.post-56124288265632762782012-07-12T09:43:00.002-06:002012-07-12T09:43:51.371-06:00Surgery ChangeI feel like this date has changed so much in the last couple of weeks leading up to this day. Well I am happy to report the date hasn't changed but the time has. Owen's new surgery time is 7:30 am. Man that's a little early. Which means we will be checking into the hospital at 5:30 AM! Now that's early. <br />
I have told many people if they would like to help us, we are just asking help with meals while we are in the hospital. If you would like to help us out with that please let me know 2 days that you think you could help us with and I will put you in our calender!!!<br />
Thank you everyone for your support!!! Prayers that everything goes great!<br />
ValOwen Murrayhttp://www.blogger.com/profile/02825128262930313091noreply@blogger.com0tag:blogger.com,1999:blog-8566900158648624779.post-46120799839805521942012-07-04T21:18:00.001-06:002012-07-04T21:18:25.443-06:00Owen Update - Surgery July 13th<span style="font-family: Calibri;">Hello everyone,<o:p></o:p></span><br />
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;"><o:p> </o:p></span><span style="font-family: Calibri;">I feel as if every-time I
write this letter something changes. I would like to apologize for how somber
the last email was; it was a very difficult day. We are currently doing well
with tons of hope. <o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">Here is the brief list of
what the last two months have been like:<o:p></o:p></span></div>
<br />
<ul style="margin-top: 0in;" type="disc">
<li class="MsoNormal" style="margin: 0in 0in 0pt; mso-list: l1 level1 lfo1; tab-stops: list .5in;"><span style="font-family: Calibri;">Seizure monitoring hospital stay (EMU). Owen
having over 100 seizures per day, very difficult to hear.<o:p></o:p></span></li>
<li class="MsoNormal" style="margin: 0in 0in 0pt; mso-list: l1 level1 lfo1; tab-stops: list .5in;"><span style="font-family: Calibri;">Ketogenic diet hospital stay. Owen responded
well to treatment but some seizures remain.<o:p></o:p></span></li>
<li class="MsoNormal" style="margin: 0in 0in 0pt; mso-list: l1 level1 lfo1; tab-stops: list .5in;"><span style="font-family: Calibri;">MRI & PET scans. Found out that Owen is a
candidate for surgery.<o:p></o:p></span></li>
<li class="MsoNormal" style="margin: 0in 0in 0pt; mso-list: l1 level1 lfo1; tab-stops: list .5in;"><span style="font-family: Calibri;">Met with surgeons. Hard day but made me a
little hopeful and scared all at the same time.<o:p></o:p></span></li>
<li class="MsoNormal" style="margin: 0in 0in 0pt; mso-list: l1 level1 lfo1; tab-stops: list .5in;"><span style="font-family: Calibri;">2<sup>nd</sup> opinion in <st1:city w:st="on"><st1:place w:st="on">Boston</st1:place></st1:city>. It was a great trip but second
opinion confirmed surgery is our best option. He is very optimistic which
was nice. Thank you Tim & Sue for letting us stay with you while we
were out. You made that trip as much fun as a trip like that could
possibly be.<o:p></o:p></span></li>
<li class="MsoNormal" style="margin: 0in 0in 0pt; mso-list: l1 level1 lfo1; tab-stops: list .5in;"><span style="font-family: Calibri;">Scheduling the surgery, if it makes Owen
better than I am ok!<o:p></o:p></span></li>
</ul>
<span style="font-family: Calibri;">It has been a very
difficult two months, but we are trying not to focus on the negative. Here are
some positive things that Owen has accomplished:<o:p></o:p></span><br />
<br />
<ul style="margin-top: 0in;" type="disc">
<li class="MsoNormal" style="margin: 0in 0in 0pt; mso-list: l0 level1 lfo2; tab-stops: list .5in;"><span style="font-family: Calibri;">Sitting up, he falls over every now and then
but it is very seldom!<o:p></o:p></span></li>
<li class="MsoNormal" style="margin: 0in 0in 0pt; mso-list: l0 level1 lfo2; tab-stops: list .5in;"><span style="font-family: Calibri;">First word, yep Owen said “ma”. I do not think
he knows what it means yet but I will take it.<o:p></o:p></span></li>
<li class="MsoNormal" style="margin: 0in 0in 0pt; mso-list: l0 level1 lfo2; tab-stops: list .5in;"><span style="font-family: Calibri;">Best yet! Owen and I had Physical therapy and
the therapist wants Owen to work on walking! Yes WALKING! I could not be
more thrilled! So Owens stands in a baby chair for support but he is
moving! I am so excited!<o:p></o:p></span></li>
<li class="MsoNormal" style="margin: 0in 0in 0pt; mso-list: l0 level1 lfo2; tab-stops: list .5in;"><span style="font-family: Calibri;">Owen has now been on top of the <st1:place w:st="on">Rocky Mountains</st1:place> and seen the ocean!<o:p></o:p></span></li>
<li class="MsoNormal" style="margin: 0in 0in 0pt; mso-list: l0 level1 lfo2; tab-stops: list .5in;"><span style="font-family: Calibri;">First wedding. We got the opportunity to be
witness a great friend get married recently so we made the long 2 ½ hour
trek up the hill to Vail for a long weekend.<span style="mso-spacerun: yes;"> </span>We were thrilled that we could share
that with our great friends.<o:p></o:p></span></li>
<li class="MsoNormal" style="margin: 0in 0in 0pt; mso-list: l0 level1 lfo2; tab-stops: list .5in;"><span style="font-family: Calibri;">First fire alarm! </span><span style="font-family: Wingdings; mso-ascii-font-family: Calibri; mso-char-type: symbol; mso-hansi-font-family: Calibri; mso-symbol-font-family: Wingdings;"><span style="mso-char-type: symbol; mso-symbol-font-family: Wingdings;">J</span></span><span style="font-family: Calibri;"> Yep, while in Vail we experienced our first
fire alarm at 2 am.<span style="mso-spacerun: yes;"> </span>It was not fun
and afterwards Owen thought that it was time to play. I guess the Sauna
got to hot. However, we were all fine! <o:p></o:p></span></li>
</ul>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;"><o:p> </o:p></span><span style="font-family: Calibri;">We are doing something
special for Owen.<span style="mso-spacerun: yes;"> </span>I am collecting fabric
ribbons to make a blanket out of.<span style="mso-spacerun: yes;"> </span>I have
received a ton of ribbons and it is coming together nicely. If you would like
to donate to the blanket of Love (as I like to call it), please just send to it
to Mike and I. Please donate to the ribbon cause! I am not asking for much,
just a fabric ribbon that is any shape form or color.<span style="mso-spacerun: yes;"> </span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;"><o:p> </o:p></span><span style="font-family: Calibri;">Well, I do not know much
more, I hope that this letter finds you all well.<span style="mso-spacerun: yes;"> </span>We have a surgery date of July 13<sup>th</sup>
at 1:30.<span style="mso-spacerun: yes;"> </span>At that moment, please take a
moment for pray for Owen.<span style="mso-spacerun: yes;"> </span>Get everyone
that you know to do the same.<span style="mso-spacerun: yes;"> </span>Let us
bombard God with Owen prayers! <o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">Thank you again for your
support, I do not think that I could do any of this without you all, so thank
you.<span style="mso-spacerun: yes;"> </span>Your letters have brought tears to
my eyes.<span style="mso-spacerun: yes;"> </span>You have given me strength that
I did not know I had.<span style="mso-spacerun: yes;"> </span>Please keep us in
your prayers as we prepare for the next step.<span style="mso-spacerun: yes;">
</span><o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">Love</span></div>
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<span style="font-family: Calibri;">Val, Mike, and Owen<o:p></o:p></span></div>
<br />
<div class="MsoNormal" style="margin: 0in 0in 0pt;">
<br /></div>
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<span style="font-family: Calibri;">The surgery Owen will have
is called a hemispherectomy.</span></div>
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<span style="font-family: Calibri;">Attached are some recent
pictures of Owen:</span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5lllErdDDonckpdl6tzv32fCyj_zCWdb0mzOt1mN_JX-Yaq7Beb9bOEyFT6MjquxMVbmPbM9ZOlQFWL8P7ibdHK8mvmYtmpixaWVEbDxtWAdz9gEYvnebZSZHX-5qztNwL7wEaPtVuP19/s1600/O1.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5lllErdDDonckpdl6tzv32fCyj_zCWdb0mzOt1mN_JX-Yaq7Beb9bOEyFT6MjquxMVbmPbM9ZOlQFWL8P7ibdHK8mvmYtmpixaWVEbDxtWAdz9gEYvnebZSZHX-5qztNwL7wEaPtVuP19/s320/O1.jpg" width="240" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgMJx_rmgECmdSRosHwCUHnzKrPC6Ot6-RB5DZgDe2ri1DyHzTyclIzdE6DbNJKw5KEjTZ6U1XlzCQ0CI2ULE93f13lOjuklvTGyzQqJCOZjy2IQh_VfvD1nn2MQ2WA5LGzeGK53dsaAiew/s1600/O2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgMJx_rmgECmdSRosHwCUHnzKrPC6Ot6-RB5DZgDe2ri1DyHzTyclIzdE6DbNJKw5KEjTZ6U1XlzCQ0CI2ULE93f13lOjuklvTGyzQqJCOZjy2IQh_VfvD1nn2MQ2WA5LGzeGK53dsaAiew/s320/O2.jpg" width="274" /></a></div>
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<br /></div>Owen Murrayhttp://www.blogger.com/profile/02825128262930313091noreply@blogger.com0tag:blogger.com,1999:blog-8566900158648624779.post-33189469802445408582012-04-29T20:41:00.001-06:002012-04-29T20:41:19.184-06:00Purple de MayoI figured even if there isn't much new to report you are probably wondering how Owen is doing.<br />
<br />So I first like to say. Sorry it has taken so long to write. These last couple of months have been pretty busy with a lot going on.We are doing good. Owen continues to show his true spirt and love! :) He has started using his left hand, we were thrilled to see it move. Recently he has decided that he has to hold the sippy cup. And gets upset when you help. We continue seeing his develop which is a big<br />positive. On the other hand the infantile spasm continue to worry us and we recently started a new drug in hopes that they would help. Unfortantly, we have seen spasms and now know what doctors are<br />talking about. We think it's the drug. We hope to be off of it soon, but we will see.<br />
<br />We have recently been cleared to go out and play without young kids. So we have been enjoying the sunshine and walking the Dora (our dog) around the neighborhood.<br />
<br />Please continue to pray that these most hated spasms are under control very soon. We hope to have a ton more answers when we get the results from his latest EEG. I am also trying to get people to support our cause so I have posted the following on Facebook and linked in. Are you going to help?<br />
<br />Pediatric stroke affects 25 in 100,000 newborns and 12 in 100,000 children under 18 years of age. Stroke is the sixth leading cause of death in children. I am a proud mom of a pediatric stroke survivor! I will be wearing my purple on May 5th to support Kids like Owen! Will you do this for the Murray family and kids and families Like us?<br />
<br />Thank you all for your support!<br />
<br />Hope this letter or note finds you well continue to pray for Owen to get over this hurtle.<br />
<br />Thanks,<br />ValOwen Murrayhttp://www.blogger.com/profile/02825128262930313091noreply@blogger.com0tag:blogger.com,1999:blog-8566900158648624779.post-63653862168303993432012-03-04T12:10:00.004-07:002012-03-04T12:10:57.214-07:00Owen update<div class="separator" style="clear: both; text-align: center;">
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Like Mike has said already, we really thank you for all the support<br />
that you have given us. We a truly blessed to have great friends and<br />
family.<br />
I really wanted to share how we are doing: the month of February was a<br />
very hard month. We started ACTH, learned how to give him a shot and<br />
watched our little boy hungary and irritable most of the day. We<br />
celebrate a my millstone birthday! Yeah!<br />
As we continued the month we watched our little boy come back! I said<br />
at the beginning of this month that I just want to see Owen smile. He<br />
graced us with his smiles as the month ended. Our house isn't filled<br />
with cries, it's filled with laughter. It's a welcome sight. We are so excited to see our Owen coming back to his normal self. <br />
We have done another EEG and met with the neologist. Good news finally<br />
came with no more spasm. The neologist warned us that he might go back<br />
afterwards. We will see after a month from now. <br />
Other that we are doing well, we are still amino suppressed so we are<br />
limiting the amount of visitors to very few. We don't want to run the<br />
risk of Owen getting sick. Soon Owen will be ready to head out and<br />
play. Until then we wait and enjoy all his smiles.<br />
We ask you keep us in your prayers. As we pray for good news from the<br />
EEG. We also keep our friend, Hazel in your prayers as well, she<br />
continues her chemo.<br />
Thank you so much!<br />
ValOwen Murrayhttp://www.blogger.com/profile/02825128262930313091noreply@blogger.com0tag:blogger.com,1999:blog-8566900158648624779.post-52683444884152657652012-02-26T15:43:00.001-07:002012-02-26T15:43:46.364-07:00Test PostTest PostOwen Murrayhttp://www.blogger.com/profile/02825128262930313091noreply@blogger.com0